WELCOME TO THE PARC
Thought for the day:
"Healing doesn't mean the damage never existed.
It means the damage no longer controls our life."
TO PARC MEMBERS, SUPPORTERS AND VISITORS:
We do our best to keep this page updated.
Been here and read everything? Looking for more? Go to our Facebook page:
RSDCANADA:PARCCurrent news and research updates are posted.
September: The PARC HELP LINEcontinues to operate in the month of September. If hours/days change, we will post it here. If you get our voice mail. please leave your name, number and details. We do return calls. Please be patient!
PARC HELP LINE Hours are Monday-Thursday 7-10 PM evenings only. TEL: 905 934 0261. PARC is on Eastern Time. ( For example, if it is 5 PM here in Eastern time, it is 2 PM in Vancouver and 3 PM in Calgary.It is 6 PM in Nova Scotia and 6:30 PM in Newfoundland. You can always leave a brief message.
NOTE: If you are not on Eastern Time, please set up a day and time with us via e-mail. Thank you! EMail Us!
PARC PLACE: Members get ready!!! We have sent sign-up instructions. If you have not received yours, please let us know. EMail Us!
CANADIAN RESEARCH: News about Montreal CRPS Research posted May 17, 2018 Please visit: .CANADIAN RESEARCH .
JULY ISSSUE: Read about the Montreal Research. What is it? For a copy, please EMail Us!
COMING SOON IN THE NOV/DEC. ISSUE: More about the Montreal Research What is Inflammation?, Personal Stories, and Brain Repatterning with Dr. Michael Irving PhD.
UPDATE: September 2018.
WALK TO CONQUER CRPS : The WALK was held September 1, 2018 in Point Pleasant Park in Halifax. All our thanks to Kristen Cameron and her team of volunteers who raised $1,000 for Montreal esearch.
Our warmest thanks to Dr Harry Pollett, and Dr. Anne Pollett for driving 4.5 hours to take part in the WALK. It is very much appreciated!
Special thanks also to Brad Farquhar and Jerry, who took part. Brad recently completed the 1600 km Iditarod race in the Arctic. He generously offered a prize for the most funds raised. It was a trip around Nova Scotia in his private plane. The prize winner kindly donated it to Tatum, an 11 year old with CRPS. Thanks also to our sponsors Tim Hortons and the Pita Pit.
ORANGE CRPS AWARENESS BRACELETS
Bracelets are available from PARC. The cost is $2 each. Proceeds go PARC PROGRAMS for 2018.
BRACELET OFFER: If you purchase 4 bracelets, you receive one free. EMail Us!
We have extended our FREE orange bracelet offer: with the purchase of a new PARC Deluxe Membership to September 30, 2018.
Major credit cards will be accepted through Paypal.
PAY IT FORWARD PROGRAM
If you have received a package, received a HELP LINE call, or a newsletter,
someone has donated to help you.
People also donate to help CRPS patients get support.
If you want to be part of this program you can help!
You are welcome to donate! Tax receipts are issued.
To donate to PARC, please click button below.
If anyone has a CRPS story in the media, please forward it to PARC for posting.
Congratulations to Dr Jeff Ennis, a caring, compassionate doctor
who wrote an excellent opinion article in the Toronto Star:
February 6, 2018.
Thank you to all the courageous patients who promoted awareness of CRPS.
You are all awesome!
October 19, 2017. Fern (CRPS Survivor) and Bella have been featured on a
Collar of Duty episode on Animal Planet. Here is the link:
Search for Collar of Duty Episode 6.
June 17, 2017: 16 year old Lauren Seabrook's struggle:
June 1, 2017. Alicia Ellis is telling her story about CRPS through Alberta Health Services..
May 21: Read about CRPS and the devastating effect it has on Rachel Caplan.
Global News May 21,2017 by Emanuela Campanella
May 17, 2017: The FIGHT Project by Lauren Seabrook, a teen with CRPS:
Please watch Krista Spence's encouraging video first played at PARC's Nov. 12/16 event:
April 18, 2017: Rachel Caplan Toronto Star:
Toronto Star April 18, 2017
Who else was interviewed? The Executive Director of PARC.
Please view Yolande Clement's successful battle with CRPS at:
CRPS: A Success Story
Yolande is also a PARC coach.
PARC's WISH LIST
- volunteers to help with PARC events.
- volunteers for our new PARC Forum: people with experience and enthusiasm
- volunteers to start support groups (support group kit)
- volunteers to be a CRPS Coach (Ask us.)
- volunter to help with newsletter editing: computer skills are necessary
- office supplies, gift cards for Staples
- volunteers to promote awareness on "Colour the World Orange Day" first Monday in November.
CRIMSON ROSE FUNDRAISER:
Lynn Langtry, composer and artist, has composed a wonderful song called Crimson Rose. It is available at:
Lynn says that 50% of sales will go to PARC and the rest to maintain her website.
It is also available on iTunes. Just search by title and her name.
Please visit her site:http://lynnlangtry.com
Thanks Lynn for supporting our charity!
We really appreciate it.
Restorative Yoga calms the mind and body. It is poses on the floor and deep breathing.
1. Try Jillian Pransky's Restorative Poses on You Tube. www.youtube.com
2. Rodney Yee's DVD: COMPLETE YOGA for Beginners.
Out of the 4 practices, the last one is Restorative Yoga which is very effective.
For more please visit: Gaiam
LDN:LOW DOSE NALTREXONE
Low dose naltrexone has been studied for CRPS and offers hope.
LDN lowers the inflammation levels in CRPS. (Please note that high dose naltrexone is for alcoholics.)
Low dose naltrexone lowers inflammation.
Weinstock,L.MD and Chopra P. MD: Identification and Treatment of New
Inflammatory Triggers for CRPS International Anesthesia Research Society 2015.
(Ask us for a copy.)
INTENSE PAIN SOON AFTER WRIST FRACTURE
STRONGLY PREDICTS WHO WILL DEVELOP CRPS
Recent research has found that
1 in 26 with a wrist fracture
can develop into CRPS.
The "red flag is pain greater than 5 out of 10".
Also if the patient has pain more than (or equal to) 5/10
for 3 days after surgery, suspect CRPS.
Early diagnosis is crucial.
DVD: LIVING A LIFE IN PAIN:
THE STORY OF RSD/CRPS
by Sarah Panas
The film features four CRPS patients, a CRPS doctor,
a psychologist and PARC's Executive Director.
You Tube Trailer:
Living a Life in Pain
Cost is $10 plus shipping = $13.50 in Canada
Please ask us about US and International rates.
Major credit cards will be accepted through Paypal.
SUPPORT GROUP OF NIAGARA(CPSN)
For further information:
please contact Will Noiles: CONTACT
ORIGINAL STAINED GLASS ART CARDS!
WATER (Design 2 of 8)
OR DESIGN Glassworks has utilized breathtaking colors and brilliant textures of stained glass for the luminous glass art that they create. These radiant cards are awesome photos of the art glass that Pam and Oded Ravek have so lovingly created. This set of 8 original cards are blank and suitable for any occasion.
MORE STAINED GLASS ART CARDS
(Design 3 of 8)
To download an order form, click here:
We are accepting online payment.
Major credit cards are accepted.
PARC PEARL: Summer 2018
Coping Corner: Self management Techniques
The Toolbox for CRPS
CURRENT NEWS from Montreal
What is Kratom?
Copies of our previous issues are still available! EMail Us!
Why subscribe to our newsletter?
"PAYING IT FORWARD" Program
Your contribution is used to help others with CRPS who have lost their way. Accoording to our HELP LINE many do not know where to turn, others are not diagnosed early nor do they receive the proper treatment. It is devastating to a pain patient when the doctor does not believe them. Others are in so much pain they cannot function well. You can help us to help them!
DOING YOUR OWN RESEARCH
The Internet may give you the research on CRPS but it is hard to interpret. When reading a research paper, please ask yourself these questions:
1. Who authored it and what is their reputation?
2. Is the paper's hypothesis valid? Do they prove the hypothesis?
3. Does it measure what it says it measures?
4. Is the conclusion valid? Are there any flaws in the data?
5. In the long run, is this paper important? What does it contribute to the general knowledge of CRPS?
6. Will this drug or treatment be available? Where? When? For example, neridronate is being hailed by the press as a "breakthrough drug for CRPS" but it is not yet available in Canada. The press is stirring up events that have not happened yet.
CRPS is very complicated and hard to research unless the authors completely understand the many elements involved in CRPS.
Who is doing what element of CRPS research? There are many lines of research to pursue i.e. inflammation, blood flow, nerve damage and brain issues. The hot new research lines are the immune system factors and brain issues.
Our newsletter draws the big picture for you and brings together all the elements of CRPS research and important conclusions. We are very well connected with several excellent researchers.
Besides, your support is very much appreciated!
A PARC FORUM is here! It is free to deluxe members.
OPTION 1: Deluxe membership ($35 per year) includes 3 issues per year, PARC Alert, Ongoing Support, CRPS Self Management Program and Forum.
Ongoing support is crucial to coping and manging CRPS. We provide this valuable service.
You are also helping another CRPS patient get the help he/she needs and benefitting from our excellent services as well.
The PARC Forum: "PARC PLACE", will be at no extra cost. It is a way of thanking our members and supporters for their onging help.
PARC PLACE is a new online forum available to deluxe members. Members are being contacted. For more information please contact us.
OPTION 2: Newsletter only: ($25 per year). The newsletter is published 3 times per year. It is on paper. (There are no services with this option.)
OPTION 1 and 2 are tax deductible and a tax receipt will be issued.
FREE TILL Ausust 31, 2018: Free CRPS awareness bracelet with the purchase of a NEW deluxe membership.
This card is the size of a credit card easily stored in a purse, wallet or pocket.
DO YOU HAVE BURNING PAIN?
HAS IT LASTED LONGER THAN THE EXPECTED HEALING TIME?
WHEN TO SUSPECT CRPS...
Signs and symptoms of CRPS.
PROFESSIONALS: Do you have patients recently diagnosed? Do you need cards for your patients, nurses, hospital or clinic staff?
This sleek 4"x 3 3/8"pocket card has concise CRPS information.
PATIENTS: Are you tired of explaining what RSD/CRPS is? Do your family and friends understand? Does your doctor know about it? Does the ER staff, specialist, local hospital, nurse,or physiotherapist know?
Now there is no need to explain--let the Pocket Card do it for you. Why not keep one in your wallet? Cost is $1.00 each.
Q: HOW CAN I GET A FREE CARD?
A: Sign up as a new member with PARC. Please send your mailing address and membership fee ($35 CDN ) deluxe membership or $25 CDN (for newsletter only ) to the address below. (US and International rates available on request.)
Q: WHAT IF I ONLY WANT CARDS ?
A: You can click the Add To Cart button below to order cards:
Proceeds go to our "Pay It Forward", Seminars and" Education Programs" for 2018.
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