NANOLUME: Invented by a pain doctor, Nanolume is a useful device for keeping track of your pain.
PAIN IS LIFE-CHANGING. HELP IS HERE. The interactive pain-tracking diary by Nanolume® helps you remember exactly what you feel every day. By keeping a record of the textures, intensities and locations of what you feel everyday, you and your doctor can better understand what you are suffering with and how your pain responds to treatment.
PERSONAL FUNDRAISING PAGES FOR MEMBERS OR NON-MEMBERS
PARC has teamed up with Canada Helps to offer personal fundraising pages where you tell your story, add some photos or videosand designate PARC as the charity which receives the funds for research in Montreal. Here is an example:
BEAT CRPS! Andy's page. Proceeds to Montreal Research.
If you would like to do your own fundraising page please call us or go to: Canada Helps. TEL: 1 877 755 1595. There is no cost involved. Please let us know.
PARC PEARL ISSUE: Update on Montreal Research, Coping Corner: Thinking Differently, Canada's Second Opioid Crisis, Book Review: How to Live Well with Chronic Pain, Bits and Pieces, Personal Stories: Kathryn Stewart.
The newsletter has been published on March 29, 2019!
Get your copy! Cost is only $25 for 3 issues per year. Each issue is dedicated to any news on CRPS. So please EMail Us!
SUMMER ISSUE 2019
Do you have issues when going to the Emergency Room about your CRPS? Do you have trouble communicating what you have and describing your pain?
A study of Neridronate for reduction of pain and improvement in bone density in patients with CRPS is being undertaken at the Wilderman Medical Clinic in Toronto. Neridronate is a safe medication that has been used for decades in other areas of medicine and only recently has found a role in CRPS.
ARE YOU ELIGIBLE?
We are looking for patients who fulfill the eligibility criteria. Participants will be reimbursed for transportation expenses to our clinic. The study is double blind and randomized. Participants will not know if they are enrolled in the study group or in the control group. Patients will be considered for the study if they have had CRPS for two years or less and if they are not involved in litigation.
Other eligibility criteria apply and will be discussed with applicants by phone.
Please call Aresh at (905) 886-1212*
*From the menu press 2, 5 then 5.
(Posted on October 22, 2018.)
For other Ontario sites where clinical trials are being held, please go to:
OR DESIGN Glassworks has utilized breathtaking colors and brilliant textures of stained glass for the luminous glass art that they create. These radiant cards are awesome photos of the art glass that Pam and Oded Ravek have so lovingly created. This set of 8 original cards are blank and suitable for any occasion.
Your contribution is used to help others with CRPS who have lost their way. Accoording to our HELP LINE many do not know where to turn, others are not diagnosed early nor do they receive the proper treatment. It is devastating to a pain patient when the doctor does not believe them. Others are in so much pain they cannot function well. You can help us to help them!
DOING YOUR OWN RESEARCH
The Internet may give you the research on CRPS but it is confusing and hard to interpret. When reading a research paper, please ask yourself these questions:
1. Who authored it and what is their reputation?
2. Is the paper's hypothesis valid? Do they prove the hypothesis?
3. Does it measure what it says it measures?
4. Is the conclusion valid? Are there any flaws in the data?
5. In the long run, is this paper important? What does it contribute to the general knowledge of CRPS?
6. Will this drug or treatment be available? Where? When? Neridronate is now in clinical trials. Please see our Canadian Research page. The US trials were unsuccessful.
CRPS is very complicated and hard to research unless the authors completely understand the many elements involved in CRPS.
Who is doing what element of CRPS research? There are many lines of research to pursue i.e. inflammation, blood flow, nerve damage and brain issues. The hot new research lines are the immune system factors and brain issues.
Our newsletter draws the big picture for you and brings together all the elements of CRPS research and important conclusions. We are very well connected with several excellent researchers.
Besides, your support is very much appreciated!
A PARC FORUM is here! It is free to deluxe members.
OPTION 1: Deluxe membership ($35 per year) includes 3 issues per year, PARC Alert, Ongoing Support, CRPS Self Management Program and Forum.
Ongoing support is crucial to coping and manging CRPS. We provide this valuable service.
You are also helping another CRPS patient get the help he/she needs and benefitting from our excellent services as well.
The PARC Forum: "PARC PLACE", will be at no extra cost. It is a way of thanking our members and supporters for their onging help.
PARC PLACE is a new online forum available to deluxe members. Members are being contacted. For more information please contact us.
OPTION 2:Newsletter only: ($25 per year). The newsletter is published 3 times per year. (There are no services with this option.)
OPTION 1 and 2 are tax deductible and a tax receipt will be issued.
FREE TILL May 31, 2019: You will receive a free CRPS awareness bracelet with the purchase of a NEW deluxe membership.
WHAT'S IN YOUR WALLET?
This card is the size of a credit card easily stored in a purse, wallet or pocket.
DO YOU HAVE BURNING PAIN?
HAS IT LASTED LONGER THAN THE EXPECTED HEALING TIME?
WHEN TO SUSPECT CRPS...
Signs and symptoms of CRPS.
PROFESSIONALS: Do you have patients recently diagnosed? Do you need cards for your patients, nurses, hospital or clinic staff?
This sleek 4"x 3 3/8"pocket card has concise CRPS information called the Budapest Criteria wwhich is the way ato diagnose CRPS.
PATIENTS:Are you tired of explaining what RSD/CRPS is? Do your family and friends understand? Does your doctor know about it? Does the ER staff, specialist, local hospital, nurse, or physiotherapist know?
Now there is no need to explain--let the Pocket Card do it for you. Why not keep one in your wallet? Cost is $1.00 each.
Q: HOW CAN I GET A FREE CARD?
A: Sign up as a new member with PARC. Please send your mailing address and membership fee ($35 CDN ) deluxe membership or $25 CDN (for newsletter only ) to the address below. (US and International rates available on request.)
Q: WHAT IF I ONLY WANT CARDS ?
A: You can click the Add To Cart button below to order cards: Cards are $1.00 each.
Proceeds go to our "Pay It Forward", Seminars and" Education Programs" for 2019.