WHAT'S NEW IN 2019

 
 
 

WELCOME TO THE PARC

 

Thought for the day:

 "Healing doesn't mean the damage never existed.

It means the damage no longer controls our life."

 

________________________________________________

 

TO  PARC  MEMBERS,  SUPPORTERS  AND  VISITORS:

WELCOME!

We do our best to keep this page updated.

(updated April 20, 2019.)

Looking for more? Go to our Facebook page:

RSDCANADA: PARC

__________________________________________________________________________________________________________________________________________

PARC NEWS


Apple App Store https://itunes.apple.com/us/app/nanolume-pain-tracker-diary/id919172608?ls=1&mt=8
 
Google Play Store:   https://play.google.com/store/apps/details?id=com.nanolume.nanolumeapp

 

 

 

NANOLUME:  Invented by a pain doctor, Nanolume is a useful device for keeping track of your pain. 

PAIN IS LIFE-CHANGING. HELP IS HERE. The interactive pain-tracking diary by Nanolume® helps you remember exactly what you feel every day. By keeping a record of the textures, intensities and locations of what you feel everyday, you and your doctor can better understand what you are suffering with and how your pain responds to treatment.

This app uses a smartphone or iPad. 

________________________________________________________________________________

PARC HELP LINE**

HELP LINE: Hours are Monday-Thursday 7-10 PM  (EVENINGS only.TEL: 905 934 0261Eastern Time.

NOTE: We are not open weekends or holidays. Check our voice message.

Please leave us a voice message with your name and number. We do call back. 

If you are not on Eastern Time, you can set up a call time with us via e-mail. Thank you! EMail Us!

(Please know that Vancouver is 3 hours earlier than Eastern Time, Alberta is 2 hours earlier and Halifax is one hour later.)

__________________________________________________________________________________________________

NEW CANADIAN RESEARCH:

News about Montreal CRPS Research posted May 17, 2018.  Please visit: CANADIAN RESEARCH . When we have a start date, we will post it here.

________________________________________________________________________________________________________________

FUNDRAISING FOR MONTREAL RESEARCH 2018-9

WALK TO CONQUER CRPS: On Sept.1, 2018 has raised $1,000. Special thanks to Kristen Cameron.Way to go Kristen!

BUILDING BRIDGES: A Brunch to Beat CRPS at Cathedral Social Hall, Saskatoon, SK on November 24, 2018. Fundraiser for Montreal research.

Andy and Jessica raised $1,400 including Andy's fundraising page on Canada Helps. Congratulations to you BOTH! Awesome! Please click here BRUNCH FUNDRAISER .

PARC continues to fundraise for this research in 2019. To donate, please visit: CANADIAN RESEARCH . 

_____________________________________________________

PERSONAL FUNDRAISING PAGES FOR MEMBERS OR NON-MEMBERS

PARC has teamed up with Canada Helps to offer personal fundraising pages where you tell your story, add some photos or videos and designate PARC as the charity which receives the funds for research in Montreal. Here is an example:

BEAT CRPS! Andy's page. Proceeds to Montreal Research.

If you would like to do your own fundraising page please call us or go to: Canada Helps. TEL: 1 877 755 1595. There is no cost involved. Please let us know.

We can post a link to your page here.

We thank you for supporting PARC!

__________________________________________________________________________________________________________________________________________________

MORE CANADIAN RESEARCH:

NERIDRONATE (Bisphosphonate): Please read NeridronateThis trial is recruiting patients.

_______________________________________________________________________________________________________________________________

PARC PEARL NEWSLETTER SPRING 2019
 

PARC PEARL ISSUE:  Update on Montreal Research,  Coping Corner: Thinking Differently, Canada's Second Opioid Crisis, Book Review: How to Live Well with Chronic Pain, Bits and Pieces, Personal Stories: Kathryn Stewart.  

The newsletter has been published on March 29, 2019!

Get your copy! Cost is only $25 for 3 issues per year. Each issue is dedicated to any news on CRPS. So please EMail Us! 

SUMMER ISSUE 2019

Do you have issues when going to the Emergency Room  about your CRPS? Do you have trouble communicating what you have and describing your pain?

Find out what to do in our summer issue!

_____________________________________________________________________________________________________________

ORANGE CRPS AWARENESS BRACELETS 

 

Bracelets are available from PARC. The cost is $2 each. Proceeds go PARC PROGRAMS for 2019.

BRACELET OFFER: If you purchase 3 bracelets, you receive one free. EMail Us!

 

PARC's Orange Awareness  Bracelet has website listed.

 

 

 

 

 

 

PARC BONUS OFFER:

We have extended our FREE orange bracelet offerwith the purchase of a new PARC Deluxe Membership to May 31,2019. 

TO PURCHASE: 

Order some for your frriends and family! Major credit cards will be accepted through Paypal.

GIBLE?A
CRPS Awareness Bracelet Quantity

 ______________________________________________________________________________________________________________________________________________

 


Neridronate (Bisphosphonate)

Clinical Trial in Toronto


A study of Neridronate for reduction of pain and improvement in bone density in patients with CRPS is being undertaken at the Wilderman Medical Clinic in Toronto. Neridronate is a safe medication that has been used for decades in other areas of medicine and only recently has found a role in CRPS.

ARE YOU ELIGIBLE?

 

We are looking for  patients who fulfill the eligibility criteria. Participants will be reimbursed for transportation expenses to our clinic. The study is double blind and randomized. Participants will not know if they are enrolled in the study group or in the control group. Patients will be considered for the study if they have had CRPS for two years or less and if they are not involved in litigation.

Other eligibility criteria apply and will be discussed with applicants by phone.

Please call Aresh at (905) 886-1212*

*From the menu press 2, 5 then 5.

 

(Posted on October 22, 2018.)

For other Ontario sites where clinical trials are being held, please go to:

CANADIAN RESEARCH 

________________________________________________________________________________________________________________________________________________

PAY IT FORWARD PROGRAM

 

If you have received a package, received a HELP LINE call, or a newsletter,

someone has donated to help you. 

People also donate to help CRPS patients get support.

If you want to be part of this program you can help!

 

You are welcome to donate! Tax receipts are issued for donations of $20 and over..

To donate to PARC, please click button below.

 

 

DVD 2013* PARC PEARL 2018-19 POCKET CARD SUPPORT GROUP NIAGARA

2019 EVENT

WISH LIST

 

 

UPDATES 2019:

If anyone has a CRPS story in the media, please forward it to PARC for posting.

________

Stories

Canada's Second Opioid Crisis

Opioid Crisis

https://www.ctvnews.ca/health/the-other-opioid-crisis-doctors-weaning-patients-off-much-needed-painkillers-1.3837163

__________

2018 Stories

Congratulations to Dr Jeff Ennis, a caring, compassionate doctor

who wrote an excellent opinion article in the Toronto Star:

February 6, 2018.

Toronto Star

________________

Thank you to all the courageous patients who promoted awareness of CRPS.

You are all awesome!

 

October 19, 2017. Fern (CRPS Survivor) and Bella have been featured on a

 Collar of Duty episode on Animal Planet. Here is the link:

www.animalplanet.ca

Search for Collar of Duty Episode 6.

 

June 17, 2017: 16 year old Lauren Seabrook's struggle:

http://www.cbc.ca/news/canada/north/yellowknife-teen-lauren-seabrook-1.4165439

 

June 1, 2017. Alicia Ellis is telling her story about CRPS through Alberta Health Services..

https://www.youtube.com/playlist?list=PLi1tOF1I5ZoWY3hfrrwu15NTWz8e9amO

 

May 21: Read about CRPS and the devastating effect it has on Rachel Caplan. 

Global News May 21,2017 by Emanuela Campanella

________

May 17, 2017: The FIGHT Project by Lauren Seabrook, a teen with CRPS:

https://youtu.be/xd6AlLmwK10

______

Please watch Krista Spence's encouraging video first played at PARC's Nov. 12/16 event:

https://www.youtube.com/watch?v=-12lCBT-EQY

______

April 18, 2017: Rachel Caplan Toronto Star:

Toronto Star April 18, 2017


Who else was interviewed? The Executive Director of PARC.

__________

Please view Yolande Clement's successful battle with CRPS at: 

CRPS: A Success Story

Yolande is also a PARC coach.

 

PARC's WISH LIST

 

 

  • helps us raise $30,000 for research: every dollar counts!
  • volunteers to help with PARC events.
  • volunteers to start support groups (support group kit)
  • gift cards for Staples
  • volunteers to promote awareness on "Colour the World Orange Day" first Monday in November 2019.

EMail Us!

 


 

 

CRIMSON ROSE FUNDRAISER:

Lynn Langtry, composer and artist, has composed a wonderful song called Crimson Rose. It is available at:

http://lynnlangtry.com/music-shop

Lynn says that 50% of sales will go to PARC and the rest to maintain her website.

It is also available on iTunes. Just search by title and her name.

Please visit her site:http://lynnlangtry.com

Thanks Lynn for supporting our charity!

We really appreciate it.

___________

Restorative Yoga  calms the mind and body. It is poses on the floor and deep breathing.

1. Try Jillian Pransky's Restorative Poses on You Tube. www.youtube.com

2. Rodney Yee's DVD: COMPLETE YOGA for Beginners.  

Out of the 4 practices, the last one is Restorative Yoga which is very effective.

For more please visit: Gaiam

__________

LDN: LOW DOSE NALTREXONE

Low dose naltrexone has been studied for CRPS and offers hope.

LDN lowers the inflammation levels in CRPS. (Please note that high dose naltrexone is for treatng alcoholics.)

Low dose naltrexone lowers inflammation.

Weinstock, L.MD and Chopra P. MD: Identification and Treatment of New

Inflammatory Triggers for CRPS International Anesthesia Research Society 2015.

(Ask us for a copy.)

 

_______________

INTENSE PAIN SOON AFTER WRIST FRACTURE

STRONGLY PREDICTS WHO WILL DEVELOP CRPS

http://www.jhandtherapy.org/article/S0894-1130(16)30196-X/fulltext

Recent research has found that

1 in 26 with a wrist fracture

can develop into CRPS.

The "red flag is pain greater than 5 out of 10".

Also if the patient has pain more than (or equal to) 5/10

for 3 days after surgery, suspect CRPS.

Early diagnosis is crucial.

________________________________

 

DVD: LIVING A LIFE IN PAIN:

THE STORY OF RSD/CRPS

by Sarah Panas

The film features four CRPS patients, a CRPS doctor,

a psychologist and PARC's Executive Director.

You Tube Trailer:

Living a Life in Pain

 

Cost is $10 plus shipping = $13.50 in Canada

Please ask us about US and International rates.

EMail Us!

 

Major credit cards will be accepted through Paypal.

 

CHRONIC PAIN

SUPPORT GROUP OF NIAGARA(CPSN)

 

_____

For further information:

please contact PARC: E-Mail Us!

 


 

ORIGINAL STAINED GLASS ART CARDS!

WATER (Design 2 of 8)

 

OR DESIGN Glassworks has utilized breathtaking colors and brilliant textures of stained glass for the luminous glass art that they create. These radiant cards are awesome photos of the art glass that Pam and Oded Ravek have so lovingly created. This set of 8 original cards are blank and suitable for any occasion.

 

MORE STAINED GLASS ART CARDS

 
 

(Design 3 of 8)

 

OPTION 1:

To download an order form, click here:

DVD/CARD FORM

 

OPTION 2:

We are accepting online payment.

Major credit cards are accepted.


 

 

PARC PEARL: Winter 2019

Topics indude:

Patient Stories

Coping Corner: Self Management Techniques 

The Toolbox for CRPS

CURRENT NEWS from Toronto and Montreal Research

Research Explained

 

_______

Copies of our previous issues are still available! EMail Us!

_______________________________________________________________________________________________________________________________________________________

Why subscribe to our newsletter?

"PAYING IT FORWARD" Program

Your contribution is used to help others with CRPS who have lost their way. Accoording to our HELP LINE many do not know where to turn, others are not diagnosed early nor do they receive the proper treatment.  It is devastating to a pain patient when the doctor does not believe them. Others are in so much pain they cannot function well. You can help us to help them!

DOING YOUR OWN RESEARCH

The Internet may give you the research on CRPS but it is confusing and hard to interpret. When reading a research paper, please ask yourself these questions:

1. Who authored it and what is their reputation?

2. Is the paper's hypothesis valid? Do they prove the hypothesis?

3. Does it measure what it says it measures?

4. Is the conclusion valid? Are there any flaws in the data?

5. In the long run, is this paper important? What does it contribute to the general knowledge of CRPS?

6. Will this drug or treatment be available? Where? When? Neridronate is now in clinical trials. Please see our Canadian Research page. The US trials were unsuccessful.

CRPS is very complicated and hard to research unless the authors completely understand the many elements involved in CRPS.

Who is doing what element of CRPS research? There are many lines of research to pursue i.e. inflammation, blood flow, nerve damage and brain issues. The hot new research lines are the immune system factors and brain issues.

Our newsletter draws the big picture for you and brings together all the elements of CRPS research and important conclusions. We are very well connected with several excellent researchers.

Besides, your support is very much appreciated!

 

MEMBERSHIP OPTIONS

 A PARC FORUM is here! It is free to deluxe members.

OPTION 1: Deluxe membership ($35 per year) includes  3 issues per year, PARC Alert, Ongoing Support, CRPS Self Management Program and Forum. 

Ongoing support is crucial to coping and manging CRPS. We provide this valuable service.

You are also helping another CRPS patient get the help he/she needs and benefitting from our excellent services as well.

The  PARC Forum: "PARC PLACE", will be at no extra cost. It is a way of thanking our members and supporters for their onging help.

PARC PLACE is a new online forum available to deluxe members. Members are being contacted. For more information please contact us.

 ----------------------------------------------

OPTION 2: Newsletter only: ($25 per year). The newsletter is published 3 times per year. (There are no services with this option.)

OPTION 1 and 2 are tax deductible and a tax receipt will be issued.

FREE TILL May 31, 2019: You will receive a free CRPS awareness bracelet with the purchase of a NEW deluxe membership. 

PARC's Orange Awareness  Bracelet has website listed.

 

 

 

 

 

 

 

 


WHAT'S IN YOUR WALLET?

 

PARC pocket card
 

This card is the size of a credit card easily stored in a purse, wallet or pocket.

 

DO YOU HAVE BURNING PAIN?

HAS IT LASTED LONGER THAN THE EXPECTED HEALING TIME?

WHEN TO SUSPECT CRPS...

INSIDE TEXT:

Signs and symptoms of CRPS.

 

PROFESSIONALS: Do you have patients recently diagnosed? Do you need cards for your patients, nurses, hospital or clinic staff?

This sleek 4"x 3 3/8"pocket card has concise CRPS information called the Budapest Criteria wwhich is the way ato diagnose CRPS.

PATIENTS: Are you tired of explaining what RSD/CRPS is? Do your family and friends understand? Does your doctor know about it? Does the ER staff, specialist, local hospital, nurse, or physiotherapist know?

Now there is no need to explain--let the Pocket Card do it for you. Why not keep one in your wallet? Cost is $1.00 each.

 Q: HOW CAN I GET A FREE CARD?

A: Sign up as a new member with PARC. Please send your mailing address and membership fee ($35 CDN ) deluxe membership or $25 CDN (for newsletter only ) to the address below. (US and International rates available on request.)

Q: WHAT IF I ONLY WANT CARDS ?

A: You can click the Add To Cart button below to order cards: Cards are $1.00 each.

 

 

Proceeds go to our "Pay It Forward", Seminars and" Education Programs" for 2019.

 

 

 

 

__________________________________________________________________________________________________________________________________

©2002-2019 PARC Organization

 

 

 

 

 

 

 

Copyright © 2002-2019 The P.A.R.C | disclaimer