WELCOME TO THE PARC
Thought for the day:
"Healing doesn't mean the damage never existed.
It means the damage no longer controls our life."
TO PARC MEMBERS, SUPPORTERS AND VISITORS:
We do our best to keep this page updated.
Looking for more? Go to our Facebook page:
(updated December 3, 2018.)
News about Montreal CRPS Research posted May 17, 2018. Please visit: CANADIAN RESEARCH .
FUNDRAISING FOR MONTREAL RESEARCH 2018-9
WALK TO CONQUER CRPS Halifax on Sept.1, 2018 has raised $1,000.Special thanks to Kristen Cameron.Way to go Kristen!
BUILDING BRIDGES: A Brunch to Beat CRPS at Cathedral Social Hall, Saskatoon, SK on November 24, 2018.Fundraiser for Montreal research.
Andy and Jessica raised $1,400 including Andy's fundraising page on Canada Helps. Congratulations to you BOTH! Awesome! Please click here BRUNCH FUNDRAISER .
PERSONAL FUNDRAISING PAGES
PARC has teamed up with Canada Helps to offer personal fundraiisng pages where you tell your story, add some photos or videos and designate PARC as the charity which receives the funds for research in Montreal. Here are two examples.
CRUSH CRPS! Proceeds to Montreal Research.
BEAT CRPS! Andy's page. Proceeds to Montreal Research.
If you would like to do your own fundraising page please call or go to: Canada Helps. TEL: 1 877 755 1595. There is no cost involved. Please let us know.
We can post a link to your page here.
We thank you for supporting PARC!
NERIDRONATE RESEARCH: Please read Neridronate. This clinical trial has started.
PARC HELP LINE
Hours are Monday-Thursday 7-10 PM evenings only. TEL: 905 934 0261. PARC is on Eastern Time. ( For example, if it is 5 PM here in Eastern time, it is earlier in Vancouver by 3 hours and in Calgary by 2 hours. It is later by 1 hour in Nova Scotia and by 1.5 hours in Newfoundland). You can always leave a brief message.
The PARC HELP LINE is operating. If hours/days change, we will post it here. PLEASE NOTE: The PARC office closes December 21 for the holiday season.
If you get our voice mail, we are on the phone helping someone.
Please leave your name, number and a brief message. We do return calls. Please be patient!
PLEASE NOTE: If you are not on Eastern Time, you can set up a call time with us via e-mail. Thank you! EMail Us!
NEWSLETTER FALL/WINTER 2018
PARC PEARL NOV/DEC.2018 ISSUE: Update on Montreal Research, Personal Stories, and Brain Repatterning with Dr. Michael Irving PhD.
The newsletter is out November 28! Get your copy! So please EMail Us!
PARC PLACE: We have sent sign-up instruction to members. If you have not received yours, please let us know. EMailUs!
ORANGE CRPS AWARENESS BRACELETS
Bracelets are available from PARC. The cost is $2 each. Proceeds go PARC PROGRAMS for 2019.
BRACELET OFFER: If you purchase 4 bracelets, you receive one free. EMail Us!
We have extended our FREE orange bracelet offer: with the purchase of a new PARC Deluxe Membership to December 31, 2018.
Major credit cards will be accepted through Paypal.
Clinical Trial in Toronto
A study of Neridronate for reduction of pain and improvement in bone density in patients with CRPS is being undertaken at the Wilderman Medical Clinic in Toronto. Neridronate is a safe medication that has been used for decades in other areas of medicine and only recently has found a role in CRPS.
ARE YOU ELIGIBLE?
We are looking for patients who fulfill the eligibility criteria. Participants will be reimbursed for transportation expenses to our clinic. The study is double blind and randomized. Participants will not know if they are enrolled in the study group or in the control group. Patients will be considered for the study if they have had CRPS for two years or less and if they are not involved in litigation.
Other eligibility criteria apply and will be discussed with applicants by phone.
Please call Aresh at (905) 886-1212
From the menu press 2, 5 then 5.
Posted on October 22, 2018.
PAY IT FORWARD PROGRAM
If you have received a package, received a HELP LINE call, or a newsletter,
someone has donated to help you.
People also donate to help CRPS patients get support.
If you want to be part of this program you can help!
You are welcome to donate! Tax receipts are issued.
To donate to PARC, please click button below.
If anyone has a CRPS story in the media, please forward it to PARC for posting.
Congratulations to Dr Jeff Ennis, a caring, compassionate doctor
who wrote an excellent opinion article in the Toronto Star:
February 6, 2018.
Thank you to all the courageous patients who promoted awareness of CRPS.
You are all awesome!
October 19, 2017. Fern (CRPS Survivor) and Bella have been featured on a
Collar of Duty episode on Animal Planet. Here is the link:
Search for Collar of Duty Episode 6.
June 17, 2017: 16 year old Lauren Seabrook's struggle:
June 1, 2017. Alicia Ellis is telling her story about CRPS through Alberta Health Services..
May 21: Read about CRPS and the devastating effect it has on Rachel Caplan.
Global News May 21,2017 by Emanuela Campanella
May 17, 2017: The FIGHT Project by Lauren Seabrook, a teen with CRPS:
Please watch Krista Spence's encouraging video first played at PARC's Nov. 12/16 event:
April 18, 2017: Rachel Caplan Toronto Star:
Toronto Star April 18, 2017
Who else was interviewed? The Executive Director of PARC.
Please view Yolande Clement's successful battle with CRPS at:
CRPS: A Success Story
Yolande is also a PARC coach.
PARC's WISH LIST
- helps us raise $30,000 for research: every dollar counts!
- volunteers to help with PARC events.
- volunteers to start support groups (support group kit)
- office supplies, gift cards for Staples
- volunteers to promote awareness on "Colour the World Orange Day" first Monday in November 2019.
CRIMSON ROSE FUNDRAISER:
Lynn Langtry, composer and artist, has composed a wonderful song called Crimson Rose. It is available at:
Lynn says that 50% of sales will go to PARC and the rest to maintain her website.
It is also available on iTunes. Just search by title and her name.
Please visit her site:http://lynnlangtry.com
Thanks Lynn for supporting our charity!
We really appreciate it.
Restorative Yoga calms the mind and body. It is poses on the floor and deep breathing.
1. Try Jillian Pransky's Restorative Poses on You Tube. www.youtube.com
2. Rodney Yee's DVD: COMPLETE YOGA for Beginners.
Out of the 4 practices, the last one is Restorative Yoga which is very effective.
For more please visit: Gaiam
LDN:LOW DOSE NALTREXONE
Low dose naltrexone has been studied for CRPS and offers hope.
LDN lowers the inflammation levels in CRPS. (Please note that high dose naltrexone is for treatng alcoholics.)
Low dose naltrexone lowers inflammation.
Weinstock, L.MD and Chopra P. MD: Identification and Treatment of New
Inflammatory Triggers for CRPS International Anesthesia Research Society 2015.
(Ask us for a copy.)
INTENSE PAIN SOON AFTER WRIST FRACTURE
STRONGLY PREDICTS WHO WILL DEVELOP CRPS
Recent research has found that
1 in 26 with a wrist fracture
can develop into CRPS.
The "red flag is pain greater than 5 out of 10".
Also if the patient has pain more than (or equal to) 5/10
for 3 days after surgery, suspect CRPS.
Early diagnosis is crucial.
DVD: LIVING A LIFE IN PAIN:
THE STORY OF RSD/CRPS
by Sarah Panas
The film features four CRPS patients, a CRPS doctor,
a psychologist and PARC's Executive Director.
You Tube Trailer:
Living a Life in Pain
Cost is $10 plus shipping = $13.50 in Canada
Please ask us about US and International rates.
Major credit cards will be accepted through Paypal.
SUPPORT GROUP OF NIAGARA(CPSN)
For further information:
please contact Will Noiles: CONTACT
ORIGINAL STAINED GLASS ART CARDS!
WATER (Design 2 of 8)
OR DESIGN Glassworks has utilized breathtaking colors and brilliant textures of stained glass for the luminous glass art that they create. These radiant cards are awesome photos of the art glass that Pam and Oded Ravek have so lovingly created. This set of 8 original cards are blank and suitable for any occasion.
MORE STAINED GLASS ART CARDS
(Design 3 of 8)
To download an order form, click here:
We are accepting online payment.
Major credit cards are accepted.
PARC PEARL: Fall/Winter 2018
Dr Michael Irving PhD: Brain Repatterning
Coping Corner: Self management Techniques
What is Inflammation? The Toolbox for CRPS
CURRENT NEWS from Toronto and Montreal Research
Copies of our previous issues are still available! EMail Us!
Why subscribe to our newsletter?
"PAYING IT FORWARD" Program
Your contribution is used to help others with CRPS who have lost their way. Accoording to our HELP LINE many do not know where to turn, others are not diagnosed early nor do they receive the proper treatment. It is devastating to a pain patient when the doctor does not believe them. Others are in so much pain they cannot function well. You can help us to help them!
DOING YOUR OWN RESEARCH
The Internet may give you the research on CRPS but it is hard to interpret. When reading a research paper, please ask yourself these questions:
1. Who authored it and what is their reputation?
2. Is the paper's hypothesis valid? Do they prove the hypothesis?
3. Does it measure what it says it measures?
4. Is the conclusion valid? Are there any flaws in the data?
5. In the long run, is this paper important? What does it contribute to the general knowledge of CRPS?
6. Will this drug or treatment be available? Where? When? For example, neridronate is being hailed by the press as a "breakthrough drug for CRPS" but it is not yet available in Canada. The US trials were unsuccessful.
CRPS is very complicated and hard to research unless the authors completely understand the many elements involved in CRPS.
Who is doing what element of CRPS research? There are many lines of research to pursue i.e. inflammation, blood flow, nerve damage and brain issues. The hot new research lines are the immune system factors and brain issues.
Our newsletter draws the big picture for you and brings together all the elements of CRPS research and important conclusions. We are very well connected with several excellent researchers.
Besides, your support is very much appreciated!
A PARC FORUM is here! It is free to deluxe members.
OPTION 1: Deluxe membership ($35 per year) includes 3 issues per year, PARC Alert, Ongoing Support, CRPS Self Management Program and Forum.
Ongoing support is crucial to coping and manging CRPS. We provide this valuable service.
You are also helping another CRPS patient get the help he/she needs and benefitting from our excellent services as well.
The PARC Forum: "PARC PLACE", will be at no extra cost. It is a way of thanking our members and supporters for their onging help.
PARC PLACE is a new online forum available to deluxe members. Members are being contacted. For more information please contact us.
OPTION 2: Newsletter only: ($25 per year). The newsletter is published 3 times per year. It is on paper. (There are no services with this option.)
OPTION 1 and 2 are tax deductible and a tax receipt will be issued.
FREE TILL Ausust 31, 2018: Free CRPS awareness bracelet with the purchase of a NEW deluxe membership.
This card is the size of a credit card easily stored in a purse, wallet or pocket.
DO YOU HAVE BURNING PAIN?
HAS IT LASTED LONGER THAN THE EXPECTED HEALING TIME?
WHEN TO SUSPECT CRPS...
Signs and symptoms of CRPS.
PROFESSIONALS: Do you have patients recently diagnosed? Do you need cards for your patients, nurses, hospital or clinic staff?
This sleek 4"x 3 3/8"pocket card has concise CRPS information.
PATIENTS: Are you tired of explaining what RSD/CRPS is? Do your family and friends understand? Does your doctor know about it? Does the ER staff, specialist, local hospital, nurse,or physiotherapist know?
Now there is no need to explain--let the Pocket Card do it for you. Why not keep one in your wallet? Cost is $1.00 each.
Q: HOW CAN I GET A FREE CARD?
A: Sign up as a new member with PARC. Please send your mailing address and membership fee ($35 CDN ) deluxe membership or $25 CDN (for newsletter only ) to the address below. (US and International rates available on request.)
Q: WHAT IF I ONLY WANT CARDS ?
A: You can click the Add To Cart button below to order cards:
Proceeds go to our "Pay It Forward", Seminars and" Education Programs" for 2018.
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